tag:blogger.com,1999:blog-5841910768079015534.post3436071337926818664..comments2024-03-29T08:40:11.883+00:00Comments on BishopBlog: Autism diagnosis in cultural contextdeevybeehttp://www.blogger.com/profile/15118040887173718391noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-5841910768079015534.post-79777271705241889452011-07-10T08:38:23.837+01:002011-07-10T08:38:23.837+01:00Dia:
I can't support your recommendations reg...Dia: <br />I can't support your recommendations regarding gluten-free diet. Here is the summary of a recent systematic review looking at all scientifically acceptable studies:<br />Mulloy et al 2010 RESEARCH IN AUTISM SPECTRUM DISORDERS Volume: 4 Pages: 328-339 <br />This paper systematically reviews research on the effects of gluten-free and/or casein-free (GFCF) diets in the treatment of ASD. Database, hand, and ancestry searches identified 15 articles for review. Each study was analyzed and summarized in terms of (a) participants, (b) specifics of the intervention, (c) dependent variables, (d) results, and (e) certainty of evidence. Critical analysis of each study's methodological rigor and results reveal that the current corpus of research does not support the use of GFCF diets in the treatment of ASD. Given the lack of empirical support, and the adverse consequences often associated with GFCF diets (e.g., stigmatization, diversion of treatment resources, reduced bone cortical thickness), such diets should only be implemented in the event a child with ASD experiences acute behavioral changes, seemingly associated with changes in diet, and/or medical professionals confirm through testing the child has allergies or food intolerances to gluten and/or caseindeevybeehttps://www.blogger.com/profile/15118040887173718391noreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-44727831241201026122011-07-08T23:31:24.549+01:002011-07-08T23:31:24.549+01:00This book sounds very interesting, & the links...This book sounds very interesting, & the links to family members exhibiting other forms of the Autism spectrum an apt comment.<br /><br />A local nurse, whose passion is educating & working with people who have gluten sensitivity has observed that as the levels of gluten intolerance/ Celiac disease have been on the rise, so has Autism! Gluten is present in many processed foods, wheat has been bred to contain more gluten (& gluten flour is often added to baked goods), & while only a small percentage of those with gluten intolerance or celiac have been diagnosed - more & more people are becoming aware of this mounting problem.<br /><br />There seems to be a strong correlation between children diagnosed with Autism who have language regression "24% of the children with language regression had an increased family history of celiac disease or IBD while none of the children without language regression did." & children diagnosed with Autism who have followed a Gluten Free diet for a significant period of time often improve significantly.<br />http://glutenfreern.com/celiac-disease-autism-link/<br />"If you or your child has autism, look into a trial of a gluten/casein free diet."Nadyahttps://www.blogger.com/profile/00730124015853971661noreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-62259610681522998832011-06-10T13:23:24.589+01:002011-06-10T13:23:24.589+01:00How can you not say it is lucrative? Children hav...How can you not say it is lucrative? Children have been children since the beginning of time. Just because we now try to give them labels and cure them...They are still children. Parents have raised them without the help of "experts" for all that time, too. Amazing, isn't it?<br /><br />My anger is at myself. It's not fair to direct it at others, shows my own insecurity. But think of it...aren't these the same children who once would be labeled as slow, or ornery, or brats, or stubborn, or a million other things.But they are still kids, with all their gifts and disabilities, just like all the rest of us. <br /><br />If they grow up with a sense of their worth, they impact the world regardless of their treatments or labels. I'm not saying the treatments aren't helpful, but the labels are very, very hurtful, especially when we give them a label of mental illness, which is what autism currently is. A label of dyslexia is much less damaging because people don't equate it with mental illness, but a mental difference, more like handedness. Dyslexia is still a dysability (freudian spelling...) in a way, yet successful entrepreneurs are highly over-represented by dyslexics, some reason because they see the big picture, and can hire people in areas with gifts that they lack. They have to learn to trust. In America, 30% of entreprenuers are dyslexic, while 10% of the populations is considered so. They now give lessons in business schools for normal minded entrepreneurs to think more dyslexically. I kid not.<br /><br />My own son was given labels of Semantic-Pragmatic disorder, educational autism, ADHD, and Aspergers. I have a degree in Special Ed, and all this time I believed it. But I've been scooting over to the label of dyslexia, in his math and writing because 1)it's true and describes his differences far more effectively than "mental illness" --he's too funny and happy to be mentally ill (either that, or his sense of humore is a great defense mechanism) <br />2) Dyslexia is a neurological difference, and many effective teaching methods would be far more helpful to him than say...ABA or "social stories". He is 17 years old and still can't write his name (signature). As a teacher, I know I should be ashamed. We were busy doing chemistry and algebra and other stuff.<br /><br />U.S. parents are just going through a discovery phase. They are just becoming aware that they are inadequate. Allen Frances...who disputes his arguement? Do we have any studies to prove he is wrong? <br /><br />Lets just make our children mentally ill with "zero empathy" and neuroleptics. Yeah, that's good.<br /><br />Rural schools are good for kids. They are seen as kids, not labels.<br /><br />Oy...sorry.usethebrainsgodgiveyouhttp://raggette.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-88412375570560170992011-05-30T19:18:19.856+01:002011-05-30T19:18:19.856+01:00I was confused for a moment, wondering if I had mi...I was confused for a moment, wondering if I had missed a new Grinker book. But evidently Unstrange Minds: A Father Remaps The World of Autism was re-titled when it was released in paperback, to Isobel's world. <br /><br />I am not sure what to say about Usethebrainsgodgiveyou assertion that an autism diagnosis is "lucrative". It's the same sorry argument that Allen Frances made...and is certainly not borne out by the experiences of very many US parents of children with autism. I cannot comment on the situation in the UK.Liz Ditzhttps://www.blogger.com/profile/03455722013211350247noreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-52627357972683866192011-05-27T14:46:48.498+01:002011-05-27T14:46:48.498+01:00We are putting WAAAAAYY to much on the backs of in...We are putting WAAAAAYY to much on the backs of innocent children. It's not cynicism, although it may look that way. It's anger. I say this as a teacher(sorta) and a mother.<br /><br />You can't see the dynamics I see. And YOU are being cynical to say that it's only the natural health industry that is pulling in the big bucks. Strawman.usethebrainsgodgiveyouhttp://raggette.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-21439104228321185232011-05-25T08:45:00.929+01:002011-05-25T08:45:00.929+01:00I think your cynicism is common, usethebrain, but ...I think your cynicism is common, usethebrain, but given that many kids diagnosed with an ASD would have been ignored or labeled "mentally retarded" in days past and left to rot, I think many lives have been improved and many doors opened to further improvements. This isn't to say that money isn't a factor -- "biomedical" "cures" founded on flimsy evidence are rapidly becoming a huge industry. But the people diagnosing ASD aren't the ones making the majority of the money.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-1323932458344675502011-05-22T01:52:45.439+01:002011-05-22T01:52:45.439+01:00It's lucrative. Expect diagnosis to continue ...It's lucrative. Expect diagnosis to continue to skyrocket as long as there is money in it. People aren't stupid and see a gravy train coming miles away.<br /><br />As for the children, have their lives improved commensurately? Not so much...usethebrainsgodgiveyouhttp://raggette.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-7290384964604781852011-05-17T19:54:12.374+01:002011-05-17T19:54:12.374+01:00A mother of an 11 yr old aspie, I find reading thi...A mother of an 11 yr old aspie, I find reading this very interesting. I was especially interesting in this passage: "if it’s just due to a change in diagnostic practices, where were all the undiagnosed autistic children in the past? Surely we would have noticed them?". <br /><br />In support groups for parents (of kids on the autism spectrum), I've been amazed by how many of the parents report there are others in their families who have asperger-like personalities (strong special interests, especially collecting stuff, loop-sided communication, tendencies to keep to themselves), or even people they were convinced would get a diagnosis if they were ever evaluated. <br /><br />These are people who never got a diagnosis, who may not be part of any kind of stats (except perhaps failed education), but who nevertheless struggled their ways through life. Some scraping by on their own, others dependent on help, maybe never leaving home. I'm sure severely autistic people may have found their way into the 'retarded'-category, but many on the high funcioning end may just have been considered a bit 'funny', may have met with attitudes like 'oh, pull yourself together', and may have failed in interactions with school, work, friends, potential partners, but still not enough to make it to any kind of stats. <br /><br />And most probably never received any useful kind of guidance, support, targeted training that would allow them to thrive and function to the best of their abilities, either...Hege F.http://www.miromurr.no/havetnoreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-50877424011614680362011-05-17T06:52:36.675+01:002011-05-17T06:52:36.675+01:00Just to say that I am already planning a blogpost ...Just to say that I am already planning a blogpost on the South Korean study. It's an important study but I do have some reservations about the methods used to get those very high prevalence figures.deevybeehttps://www.blogger.com/profile/15118040887173718391noreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-45866906239198252472011-05-17T00:24:20.718+01:002011-05-17T00:24:20.718+01:00Thanks Dorothy. One of many on my list of Books-I-...Thanks Dorothy. One of many on my list of Books-I-really-should-have-read-by-now.<br /><br />Grinker's name came up recently in connection with studies suggesting that more than 1 in 50 kids in South Korea meet current autism criteria. This is the best analysis I've seen of that study so far:<br /><br />http://autismsciencefoundation.wordpress.com/2011/05/09/prevalence-of-autism-spectrum-disorders-in-a-total-population-sample/drbrocktagonhttps://www.blogger.com/profile/15225859145004971487noreply@blogger.com