tag:blogger.com,1999:blog-5841910768079015534.post5468673011681069018..comments2024-03-29T08:40:11.883+00:00Comments on BishopBlog: The allure of autism for researchersdeevybeehttp://www.blogger.com/profile/15118040887173718391noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5841910768079015534.post-75329341679207675982016-10-30T14:44:20.847+00:002016-10-30T14:44:20.847+00:00I tried unsuccessfully to recruit children with la...I tried unsuccessfully to recruit children with language impairments into my dissertation study back in 2011/2012. I found it substantially easier to recruit children with autism in my research. Parent-driven organizations that makes the autism community accessible to researchers. I think that awareness campaigns and parent groups do have an impact on research objectives, funding, and recruitment opportunities. It ends up being a circular problem where awareness campaigns, communities, researchers, funding groups, and other organizations all drive research priorities together. This same issue happens with medical conditions like cancer where research priorities don't always line up with public health impacts for many different reasons.Anonymoushttps://www.blogger.com/profile/16383958137666606841noreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-47427245204405318142016-10-28T13:37:31.382+01:002016-10-28T13:37:31.382+01:00Human beings, especially researchers, are problem-...Human beings, especially researchers, are problem-solvers and autism is an intriguing conundrum that has taxed great minds for decades. There is considerable cachet attached to researching a puzzling condition that appears to have consistently defeated those intellects.<br /><br />Autism is a puzzle of course, because it’s simply a label for a cluster of behavioural features that could have a whole host of different causes in different people - including SLIs. But autism is still widely perceived as an enigmatic, elusive unitary medical condition the aetiology of which will yield only to an army of researchers funded by the equivalent of a king’s ransom.<br /><br />What we really need is an army of researchers looking at each piece of the puzzle that is typical and atypical child development; only then will we begin to see the big picture that will explain some of the apparently intractable mysteries we’ve been tackling from the wrong angle.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5841910768079015534.post-81745495843221933092016-10-28T08:00:14.161+01:002016-10-28T08:00:14.161+01:00As a researcher and clinician I am often baffled b...As a researcher and clinician I am often baffled by some parents stating they are disappointed that their child received a SLI diagnosis or other instead of an autism diagnosis. However, I can understand their disappointment. Autism is often portrayed in the media and most people have at least heard about it. So for a parent I can imagine that it is easier to deal with something known rather than an obscure condition only clinicians know about. Furthermore, there has been in the last years a movement for the portrayal of autism not as a “disorder” but as a different way of functioning and there has been considerable lobbying from parents and researchers for a reconceptualisation of ASD towards this “non-pathological” view. Also, the amount of funding and services a child with a non-ASD diagnosis receives in my country is ridiculously low compared to what a child with ASD would receive. <br /><br />Because of this and other factors, I think that autism currently occupies a very privileged place in psychiatric research and that there are unprecedented lobbying efforts to shape research to the needs and views of autistic people and parents (e.g Pellicano et al., 2013). I think that this is mostly a good thing but it worries me that these efforts could be detrimental for other disorders given that the amount of funding and researchers is limited. Also, I am extremely concerned that this lobbying, combined with the loose diagnostic criteria for autism (especially after DSM 5) lead many clinicians to choose, when in doubt, to give the more funded and popular diagnosis instead of a more obscure one. This will lead to an increased heterogeneity in the autism community, which in turn, if this community is involved in shaping research, will lead to research on an always broader and more loosely defined condition and will slow scientific and clinical progress. In that regard, while I think your campaign for language impairments very relevant and needed, maybe a campaign to reshape autism to a better defined condition with more stringent diagnostic criteria would be more useful.Anonymousnoreply@blogger.com